Sunday, 26 March 2017

Happy Mothers Day!

Happy Mother's Day to all you wonderful mothers out there!!

I am sure I am not alone and spending this lovely day in bed, in pain.

Not just "normal" pain though, but this incredibly awful Skin Flare. Its hard to describe, kind of feels like your skin is on inside out, all over body sunburn.  I can feel every stitch of clothing and bedding and it hurts. There's nothing I can do to help except take my heavy artillery meds and hope it passes.

What did I do to deserve this one you ask?

I went out for a drive with my boys yesterday. Yes, I sat in a car for an hour.  That is it!! Oh and I pushed my darling boy on the swing in our back garden. Let's not forget that one!! Ffs!!

As a result I didn't sleep well, tossing and turning (waiting to basically pass out) and when I did sleep, I woke up in agony.

My Darling boy climbing over me this morning was insanely painful. Sadly he is too good at saying Ouch because it leaves my mouth before I can stop it.

But I pasted on a smile and thanked him for the wonderful card he had made (thanks Daddy) and hid my agony to give him a cuddle.
His my relief when I knew they were going out so I could suffer in silence. Cue mummy guilt (my constant companion). She's a right b@tch that one. Follows me around constantly.

Anyway, I know I am not alone. It saddens me to see just how many people are living a similar hell to me.

To you, if you are reading this I want to say. Stop. Take a breath. Take a moment to think about what's good in your life. Embrace the love and GIVE YOURSELF A BREAK!!  Don't be too brave, take your meds, take it easy.  Shut mummy guilt in a freaking box and shut the lid! She has no place on your shoulder today.

To everyone else, do you love a chronic pain sufferer?
See if you can do one small thing for them to help them take care of themselves.
Do they need anything from the shop? A shoulder to cry on? A non judgmental ear? Someone to take the kids to the park??

Whatever it is don't let them put on their mask and say No "I'm fine"
Its not true!!
If they're having a good day please remind them not to over do it. There is always a price to pay sadly.

Anyway, that's me done waffling. I'm following my own advice. I'm chilling, relaxing in bed, waiting on meds to kick in.  Listening to an audiobook (can't hold books these days) and giving myself a break!
Its OK not to be OK!!

Much love and gentle hugs to all 💜💜💜💜

Thursday, 23 March 2017

Heartfelt thanks 💜

I want to take this opportunity to thank everybody who was involved with The Great MoJo run (mojo was my nickname at primary school), I am truly thankful.  From the organisers to those who participated and /or donated. Thank you 💖

I have a massive wish list of things that will help me with my daily struggles. Trust me when I say I'm thinking very carefully about what to spend the money on.   I am very conscious of all the hard work and effort that went into this event and I want you to know just how much it means to me.

This is not just about money, this is about you all helping me with my pain and daily struggles.

I am truly blessed. Thank you!!

Friday, 10 March 2017


Huge day tomorrow.

The MoJo run is on tomorrow.
I still can't believe that my friends and neighbours are doing this for me. It is truly humbling.

Love and Gentle hugs to all 💜💜💜💜💜